As the technology partner to the Education Network to Advance Cancer Clinical Trials (ENACCT), we are pleased to announce the launch of the re-designed Website, ENACCT.org. ENACCT is a leading not-for-profit organization dedicated to improving access to cancer clinical trials through education and collaboration with communities, health care providers, and researchers. (more…)
Posts Tagged ‘Patient Education’
Education Network to Advance Cancer Clinical Trials (ENACCT)
Wednesday, October 21st, 2009Tags: cancer, clinical trials, Continuing Medical Education, Drupal, e-learning, Moodle, Patient Education
Posted in Continuing Medical Education, Drupal, Moodle, Patient Education, cancer, consumer health, e-learning, eCME, health 2.0, learning management system, medical education, open-source software | No Comments »
Announcing the New “Center for Hearing and Communication” Website
Tuesday, October 20th, 2009

We are pleased to announce the launch of the newly re-designed “Center for Hearing and Communication” Website. DLC Solutions partnered with the Center for Hearing and Communication (formerly known as The League for the Hard of Hearing) to produce the new Website, which reflects CHC’s new organizational brand and provides a wealth of information and resources for people affected by hearing loss.
Working closely with CHC, our team provided a complete end-to-end production solution that included: strategic planning, graphic design, information architecture, Flash development, software engineering, and technical project management services. The site was developed using the industry-leading (and our favorite) content management system, Drupal. By using Drupal, CHC is able to manage all aspects of the site through a Web browser, reduced development costs, streamline internal content publication, and set the stage for the ongoing expansion of the site into peer-to-peer networking and social media.
We are so pleased to be able to partner with CHC on this re-design initiative and hope that the effort will help to connect people affected by hearing loss with experts, peers, and the appropriate support services.
Tags: consumer health, Drupal, open-source software, Patient Education, social media
Posted in Drupal, Patient Education, Web 2.0, Web development, consumer health, health 2.0, marketing, open-source software | No Comments »
5 Reasons Why Twitter Is Relevant To Healthcare
Thursday, July 16th, 2009Twitter.com, the widely-popular, free Web 2.0 platform that delivers short, real-time text messages to your social network of friends and colleagues, is slowly gaining traction in the healthcare market. Consistent with my fifteen years of experience as both a healthcare professional, technologist and social media expert, consumer and patient advocacy groups are leading the way in experimenting with Twitter and other social media tools when compared to the medical professional education organizations (e.g., associations, pharmaceutical and medical device companies, medical education companies, academia).
Over the past few months, I have conducted my own personal experiment to evaluate the benefits and limitations of Twitter as a social media tool to advance my professional development. Similarly, I have also reached out to my friends and colleagues, who are leaders in patient advocacy and continuing medical education, to gauge their current use, knowledge and/or future interest in leveraging Twitter as part of their organization’s Web, marketing, and social media strategy. I will create a summary of those discussions in a separate post, but I have heard everything from:
- “Huhh?”
- “I can barely wrap my head around our Website.”
- “It is noise.”
- “I tried it for a week and don’t get it.”
- “Yes. We have tried a number of different pilots and are finally getting some pull-through.”
- “I am addicted.”
I do not believe the wide spectrum of responses are uncommon and I continue to work with my friends and colleagues on developing a different understanding and appreciation of social media within their healthcare enterprise:)
So here are the five reasons why I believe Twitter is relevant to healthcare:
- Professional Networking: Hands-down, I have found the professional networking capabilities of Twitter to be the most valuable benefit. When I first setup my account, I immediately “followed” people I knew from my favorite blogs and podcasts (aka “Twitter Celebrities”). However, I was quickly disappointed by this approach. Many of these high-profile Twitterers offered little in the way of the golden nuggets of information and commentary I was looking for. Instead, I received rambling posts like: “My baby just threw macaroni at me!” or “Starbucks has the best coffee”. Who cares? Not me (personal preference). So I refined my Twitter approach, “unfollowed” many of those celebrities, and began to follow some of the people who were replying interesting posts to those celebrities or I had found through Twitter Search. Twitter.com has powerful built-in search and connection features that enables you to see other people’s interests, read their posts, and easily follow them with a click of a button. Today, I have developed a wonderful network of people who provide a wealth of information related to my professional interests (e.g., continuing medical education, pharmaceutical marketing, patient advocacy, social media, Web 2.0). In the absence of Twitter, it would have been very difficult to rapidly find and network with such interesting group of people outside of my normal professional circles.
- Research: Twitter has become my real-time “stock ticker” of healthcare and technology news, commentary, and events. Not a day goes by that I do not receive a number of interesting posts on new CME programs, different applications of Web technologies to health education, and new research on how medical professionals and patients are engaging social media. For example, I recently received a post that the Pew Internet & American Life Project had just released a new study, “The Social Life of Health Information” authored by Susannah Fox. I am, like many of us, a huge fan of Susannah’s research. I was immediately able to follow the post’s link, download the research report, and also follow and communicate with Susannah about her work. The whole process took about 5 minutes (longer to read the research paper:), I am better informed about e-patients, and I am able to speak in real-time with the author about her findings.
- Marketing and Visibility: Twitter offers the potential to reach millions of people. Within healthcare, I believe Twitter presents tremendous viral marketing opportunities for the dissemination of new and innovative health research and initiatives. I have seen a number of organizations, such as the Cleveland Clinic, the Lance Armstrong Foundation, and the Centers for Disease Control, begin to leverage Twitter as part of their social marketing strategy to promote new health initiatives, announce new CME programs, and create a personal relationship with the public. The posts are sent out to their thousands of followers who then “retweet” the posts to their followers, and so on. Pretty soon, they have exponentially reached thousands of people by taking 15 seconds to type a short post with a link. Personal example: When we launched the new version of The Wellness Community Online, an innovative Website that provides free, real-time support to cancer survivors, I tweeted out an announcement to my network. My followers then retweeted my post to their followers. In addition, I asked Doug Ulman, CEO of the Lance Armstrong Foundation and who has 327,000 followers, to retweet my post. He did and we saw a substantial increase in traffic to the site, which will hopefully assist people with cancer in coping with their illness. Cost: Nothing. Impact: Huge. Powerful stuff!!!
- Professional Development: In addition to the wealth of educational opportunities (e.g., conferences, seminars) I have found through Twitter, I have also been very impressed by how healthcare professionals are able to put together impromptu gatherings at local restaurants or universities to discuss healthcare education and technology. In March, I found Twitter posts about putting together an “un-conference” called HealthCamp Philadelphia. The event’s objectives, agenda, and logistics were largely coordinated through Twitter and a free WordPress blog. No expensive in-person planning meetings or printed marketing materials were required. The result was a wonderful, low-cost conference on the role of social media and Web 2.0 technologies, which was attended by healthcare professionals and technologists alike.
- It is One More Tool in our Social Media Arsenal: Twitter is not THE answer to social media. It is, however, a powerful addition to any healthcare organization’s social media strategy. When used appropriately, Twitter can exponentially raise awareness about research, case studies, new initiatives, and news. Personally, I can say that by spending a couple of minutes a day, I have gained a tremendous amount of knowledge and developed a wealth of new connections with some people doing some amazing work in healthcare technology. Try it, experiment with it, and revise your usage strategy until you find one that best suits your needs.
I am sure that we all could come up with an endless list of how Twitter and other social media technologies can and are benefiting healthcare and our professional development. I am hopeful that the healthcare community will be more willing to “test the waters” with Twitter as part of their social media strategy. On a technical note, I rarely use the Twitter.com Website for my tweets. Instead, I use two free applications: TweetDeck on my desktop and Twitterrific on my iPhone.
Tags: consumer health, Continuing Medical Education, health 2.0, healthcare, Patient Education, socialmedia, web2.0
Posted in CME, Continuing Medical Education, Web 2.0, consumer health, health 2.0, healthcare, marketing, medical communications, medical education, social networking | 10 Comments »
Online Cancer Support Just Got Better…
Wednesday, June 17th, 2009Approximately 35% of people with cancer experience significant psychological distress, including depression and anxiety (Zabora, 2001). Since 2001, DLC Solutions has partnered with The Wellness Community to design and produce “The Wellness Community Online” (http://www.thewellnesscommunity.org). The Website is widely regarded as the first Website to offer free, professionally moderated online support groups and education programs to people living with cancer and their caregivers. In 2005, we designed and launched www.Grouploop.org to provide psychological support to teens affected by cancer.
As part of of our ongoing commitment to innovation and cancer care, DLC Solutions and TWC recently released a wealth of new social media features to enhance the community experience.
Website Features
- Professionally-led, real-time chat support groups
- Peer-to-peer social networking
- Secure, thematic discussion forums
- Personal blogs
- Video journals
- Webcasts and podcasts
- Instant messaging
- Interactive education modules
- Research tools to monitor symptoms and key quality of life indicators
Today, both Websites have provided peer-to-peer and professionally moderated support to thousands of people impacted by cancer, HIV/AIDS, Parkinson’s Disease, and other chronic illnesses. The Wellness Community Online is also part of a research partnership between TWC, Stanford University, and the University of California at San Francisco designed to enhance access to quality psychological support to people living with cancer and other chronic illnesses. The research team has scientifically demonstrated that these online support groups are just as effective as face-to-face groups in reducing depression, increasing zest for life, and improving overall social functioning and quality of life. Review a complete listing of the research publications from this effort.
We are very excited to be a part of such a wonderful and impactful Web initiative and we look forward to continuing to expand the site to better help those affected by cancer and other life-threatening illnesses.
Tags: cancer, consumer health, Online Support Groups, open-source software, Patient Education, social networking
Posted in Online Support Groups, Patient Education, The Wellness Community, Web 2.0, cancer, ehealth, health 2.0, open-source software, social networking | 1 Comment »
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