Archive for the ‘social networking’ Category

May 22nd, 2008 By Jeremy Lundberg Comments Off

ABC News Highlights TheWellnessCommunity.org

As part of a special on melanoma, ABC News highlights www.TheWellnessCommunity.org, a cancer social support and networking Website for people affected by cancer. Since 2001, DLC Solutions has been the technology partner with The Wellness Community on the initiative, which helps an estimated 300,000 people each year.

April 28th, 2008 By Jeremy Lundberg Comments Off

The Wisdom of Patients: Health Care Meets Online Social Media

What is Health 2.0? A new report from the California Health Care Foundation defines the term as: “The use of social software
and its ability to promote collaboration between patients, their
caregivers, medical professionals, and other stakeholders in health.” While the definition may appear simplistic, the broad range and depth of how social networking applications are and will continue to transform health care cannot be understated.

In the report, author Jane Sarasohn-Kahn of THINK-Health provides a thoughtful overview of how health technology companies are harnessing the power of groups to provide support, drive decision-making, and streamline information sharing. And, as the author aptly points out, “Consumers are well ahead of other health stakeholders in adopting social media in health.” Our experience would support this statement. Compared to our patient advocacy clients, the medical professional community has been slow to embrace these technologies as powerful tools for clinical education and collaboration. Thankfully, we are seeing a real change in this mindset.

Other key points discussed in the article include:

  • The role of group cohesiveness in weeding out inaccurate information, while promoting good information.
  • The creation of “patient opinion leaders.”
  • Concerns about (and the reasonable expectation of) privacy and security.
  • And, the growing proliferation of niche (e.g., disease specific) networks.

The report is a welcomed addition to the growing body of evidence supporting the use of social media in health care.

April 23rd, 2008 By Jeremy Lundberg Comments Off

And The Best Web 2.0 Tech Podcast Award Goes To…


Buzz Out Loud is CNET’s “podcast of indeterminate length,” featuring Molly Wood, Tom Merritt, and Jason Howell having daily discussions about all things tech, including Web 2.0, social networking, hardware, gadgets, and business news. The show is smart and funny and should be considered “must listening” for anyone mildly interested in understanding the current and future directions of the Web.

March 17th, 2008 By Jeremy Lundberg 1 Comment »

Medical Device Manufacturer Launches ED Social Networking Site

Cook Medical has launched a site, MensHealthPD.com, to connect and educate professionals and consumers on a form of erectile dysfunction called Peyronie’s disease. In addition to the standard educational materials and media, the site contains a public discussion forum (the social networking feature of the site).

I am really pleased to see another medical device company venture into the social networking realm. Having developed e-health Websites and communities for the past eight years, we have always found there to be great interest by pharmaceutical and device manufacturers to own and operate their own non-branded, consumer Web communities around a specific illness. However, their desire to let consumers contribute to the Website through features, such as blogs and discussion forums, is often limited or eliminated by internal legal and regulatory teams over liability concerns (e.g., documentation of serious adverse events that may be discussed by community members). As a consequence, many companies chose to stick with static, brochure Websites rather than developing a structured, strategic plan for social networking technologies that controls for risk, leverages the real power of Web 2.0 features, and provides a true service to the health care community.

Personally, I can only recall seeing a handful of inappropriate comments by members of the online health communities we have managed over the years. The comments were inappropriate, but rather benign. And, in keeping with the stated “Terms of Service Agreement”, the comments were moderated and removed from the communities. So, while we do live in an litigious society, there are steps and protocols that can be implemented to manage that risk.

March 13th, 2008 By Jeremy Lundberg Comments Off

Gracias YouTube!

YouTube came out with some very exciting news this week with the release of their new API, which will enable Web developers to have greater control over the way videos are embedded and displayed within Websites. The move is largely seen as the beginnings of a paradigm shift from being a destination Website to a video distribution service. As a consequence of this welcomed news, we will now be able to offer very robust video-sharing capabilities within our social networking applications for patients and professionals. Improved video blogging, topic-specific channels (e.g., breast cancer), personalization of member content are just some of the features that will benefit from this move. Thanks YouTube!