Archive for the ‘Online Support Groups’ Category

November 6th, 2009 By Jeremy Lundberg Comments Off

The Wellness Community and Gilda’s Club Unify to Provide Support to All People Affected By Cancer

Yesterday, two prominent cancer support organizations, The Wellness Community and Gilda’s Club, announced they were merging under the new name, “The Cancer Support Community.”  I was honored to have been invited to present on “Social Media: Transforming marketing and outreach in the not-for-profit world” at their annual National Cancer Leadership Conference in Washington, DC.  The program was attended by more then 300 hundred healthcare professionals working in the field of psychosocial oncology.

Here is a snippet from the official press release:

“The Cancer Support Community offerings include a comprehensive menu of personalized and essential services, including support groups, counseling, education and healthy lifestyle programs. Additionally, the organization is working to expand its vital services to meet the urgent needs of cancer patients and their loved ones. To ensure no one has to face cancer alone, these support services will soon be available to people in all 50 U.S. states and internationally through the Cancer Support Community’s network of community-based centers, and at hospitals, community oncology practices and other non-profits, as well as online. The Cancer Support Community is also exploring the use of novel technologies, including mobile, to help extend the reach of these meaningful resources.

The Cancer Support Community is now the largest employer of psychosocial oncology mental health professionals in the United States. Headquartered in Washington, D.C., the organization includes a network of nearly 50 local Gilda’s Clubs and Wellness Community centers worldwide, more than 100 satellite locations and online support services that extend around the world. For more information about the Cancer Support Community, visit www.cancersupportcommunity.org“.

We have had the pleasure of being The Wellness Community’s technology partner for the past ten years and are so pleased to see these two wonderful organizations join forces to help everyone affected by cancer through their free support and education programs!

October 7th, 2009 By Jeremy Lundberg Comments Off

“To Friend or Not to Friend?” Healthcare Practice in the Age of Social Media

There has been a lot of healthy discussion lately about professional boundaries with patients when using social networking (SN)  and social media (SM) technologies, such as Facebook and Twitter.  The debate about how to keep your personal and professional life separate is especially challenging when you consider that social media is inherently designed to bring people together.

I advise my healthcare clients against “friending” or connecting with patients on their personal social networks because the unforeseen consequences and risks are too great and it takes the professional relationship outside of the clinic and makes its personal.  There was an recent incident on Twitter where the actress Demi Moore received a “tweet” from a person threatening suicide.  The story ended well with the person getting help.  But, as a healthcare provider, imagine if a patient you let join your social network started using the medium to get medical advice, therapy, or crisis management outside of the clinic or after hours.  It would be very difficult to manage and document the situation effectively, require you to constantly monitor your social network, and then untangle yourself from the online connection after the crisis had past. The professional risks greatly outweigh the benefits and can potentially compromise patient care.  Overall, social media should not be substitute for seeking medical care in the appropriate clinical setting or used to circumvent appropriate professional-patient boundaries.

Conversely, I am a huge advocate of healthcare organizations applying different social media tools to advance professional education and patient care.  When used appropriately with monitoring and moderation processes in place, the research does support the use of such technologies to raise awareness about diseases, provide support, advance professional competencies, and improve adherence to treatment.  But, in the age of social media, I believe that healthcare providers should work to keep their personal and professional lives separate to the benefit of all those involved.  Many of social media Websites have access/privacy controls that enable you to restrict access to your content and network, which will help mitigate such risks.

Here are two articles I thought you might find of interest.  One article is from a physician’s experience with a former patient on Facebook that was published in the New England Journal of Medicine and the other is from a respected social media analyst, Jeremiah Owyang:

June 17th, 2009 By Jeremy Lundberg Comments Off

Online Cancer Support Just Got Better…

The Wellness Community Online

The Wellness Community Online

Approximately 35% of people with cancer experience significant psychological distress, including depression and anxiety (Zabora, 2001).  Since 2001, DLC Solutions has partnered with The Wellness Community to design and produce “The Wellness Community Online” (http://www.thewellnesscommunity.org).  The Website is widely regarded as the first Website to offer free, professionally moderated online support groups and education programs to people living with cancer and their caregivers.  In 2005, we designed and launched www.Grouploop.org to provide psychological support to teens affected by cancer.

As part of of our ongoing commitment to innovation and cancer care, DLC Solutions and TWC recently released a wealth of new social media features to enhance the community experience.

Website Features

  • Professionally-led, real-time chat support groups
  • Peer-to-peer social networking
  • Secure, thematic discussion forums
  • Personal blogs
  • Video journals
  • Webcasts and podcasts
  • Instant messaging
  • Interactive education modules
  • Research tools to monitor symptoms and key quality of life indicators

Today, both Websites have provided peer-to-peer and professionally moderated support to thousands of people impacted by cancer, HIV/AIDS, Parkinson’s Disease, and other chronic illnesses.  The Wellness Community Online is also part of a research partnership between TWC, Stanford University, and the University of California at San Francisco designed to enhance access to quality psychological support to people living with cancer and other chronic illnesses.  The research team has scientifically demonstrated that these online support groups are just as effective as face-to-face groups in reducing depression, increasing zest for life, and improving overall social functioning and quality of life.  Review a complete listing of the research publications from this effort.

We are very excited to be a part of such a wonderful and impactful Web initiative and we look forward to continuing to expand the site to better help those affected by cancer and other life-threatening illnesses.

June 16th, 2009 By Jeremy Lundberg Comments Off

Online Support Groups, Diabetes and Twitter, and “Facebook for Pharmacists”

June 9th, 2009 By Jeremy Lundberg Comments Off

e-Health Game Changers: Smart phones, social media, and popular online groups