Archive for the ‘ehealth’ Category

June 8th, 2010 By Jeremy Lundberg Comments Off
health2.0

Social Media and the Mobile Internet in Health Messaging

Many thanks to Susannah Fox and her colleagues at Pew Research Center’s Internet and American Life Project for continuing to generate some wonderful research on e-health.  The below presentation highlights the key findings of two new reports:

  • “Chronic Disease and the Internet”
  • “Understanding the Participatory News Consumer”

Both studies provide an in-depth look on the evolving role of social media, the Internet and the empowered patient.

June 17th, 2009 By Jeremy Lundberg Comments Off

Online Cancer Support Just Got Better…

The Wellness Community Online

The Wellness Community Online

Approximately 35% of people with cancer experience significant psychological distress, including depression and anxiety (Zabora, 2001).  Since 2001, DLC Solutions has partnered with The Wellness Community to design and produce “The Wellness Community Online” (http://www.thewellnesscommunity.org).  The Website is widely regarded as the first Website to offer free, professionally moderated online support groups and education programs to people living with cancer and their caregivers.  In 2005, we designed and launched www.Grouploop.org to provide psychological support to teens affected by cancer.

As part of of our ongoing commitment to innovation and cancer care, DLC Solutions and TWC recently released a wealth of new social media features to enhance the community experience.

Website Features

  • Professionally-led, real-time chat support groups
  • Peer-to-peer social networking
  • Secure, thematic discussion forums
  • Personal blogs
  • Video journals
  • Webcasts and podcasts
  • Instant messaging
  • Interactive education modules
  • Research tools to monitor symptoms and key quality of life indicators

Today, both Websites have provided peer-to-peer and professionally moderated support to thousands of people impacted by cancer, HIV/AIDS, Parkinson’s Disease, and other chronic illnesses.  The Wellness Community Online is also part of a research partnership between TWC, Stanford University, and the University of California at San Francisco designed to enhance access to quality psychological support to people living with cancer and other chronic illnesses.  The research team has scientifically demonstrated that these online support groups are just as effective as face-to-face groups in reducing depression, increasing zest for life, and improving overall social functioning and quality of life.  Review a complete listing of the research publications from this effort.

We are very excited to be a part of such a wonderful and impactful Web initiative and we look forward to continuing to expand the site to better help those affected by cancer and other life-threatening illnesses.

June 21st, 2007 By Jeremy Lundberg Comments Off

New Social Networking Website for Cancer Patients and Caregivers Launched

After months of intensive collaboration with our friends at The Wellness Community, I am please to announce the launch of The Virtual Wellness Community (http://www.thewellnesscommunity.org). The re-designed Website provides cancer patients and caregivers with powerful social networking tools to exchange information and gain support as they cope with cancer.

Key features include community-driven discussion forums, professionally-moderated online support groups, media sharing, chat, and educational resources. Our creative design team embraced TWC’s tag line of “Support. Education. Hope.” to create an intuitive, user-friendly navigation for the site. On the technology side, our team leveraged open source technologies (e.g., PHP, MySQL) and Adobe Flash to keep development costs low and performance and accessibility high.

The Virtual Wellness Community helps approximately 125,000 online visitors annually.

May 1st, 2007 By Jeremy Lundberg Comments Off

95 Million American Adults Use the Internet for Health: A case for rich media in patient education

A recent study published by the Pew Internet & American Life Project (2006) entitled, “Health Information Online” reports that 95 million (or 80%) American adult Internet users are searching for healthcare information. Primary health searches focused on a specific disease or condition (66%), medical procedures or treatments (51%), and research on medications (40%). Those numbers are certainly impressive, but hardly surprising when you consider the heightened levels of distress and uncertainty individuals (and their loved ones) experience when they are confronted by illness. Enhanced access to quality health services and information improves treatment outcomes and, in many cases, overall quality of life and social functioning. The Internet has clearly become an integral part of that equation.

There are a wealth of Web sites that offer quality information on a wide range of specific conditions and treatments. Many of these sites are well funded and have teams of technologists, medical writers, and clinicians producing and delivering content. However, I continue to be surprised by the static nature of most content, the minimal reliance on elearning best practices, and the relative low rates of utilization of rich media. After all, given that a primary intent of these Web sites is to educate patients and caregivers on complex medical topics, does it not stand to reason that we should employ mixed media to accommodate different learning styles and preferences? Doesn’t blended learning have a place in patient education? I believe the answer to both questions is a resounding “Yes”. So, what then are the obstacles to incorporating rich media in patient-oriented elearning programs?

In speaking with members of the professional and advocacy communities about this topic, I often hear that “patients have not shown interest” or do not have necessary technical capabilities (e.g., broadband connectivity) required to access rich media, such as video, Webcasting, podcasting, live chat, and animations. The former would require a formal study, but I would be surprised to hear results stating that patients would prefer text-heavy HTML documents to a blended learning environment complete with expert videos, roundtable podcasts, online chats, medical animations, and interactive exercises. When done appropriately, blended learning and rich media should: 1) engage the learner, 2) accommodate different learning styles, 3) explain and reinforce knowledge, and 4) assist in the assimilation of information into long-term memory. Certainly, we have seen this paradigm validated within other target populations. As for patients’ technical capabilities, there is compelling research showing that 70% of suburban and urban Americans and 62% of rural Americans have broadband access at either work or home. (Pew Internet & American Life Project. 2006. Rural Broadband Internet Use. Online at: www.pewinternet.com). Similarly, 98% of Internet users have Macromedia Flash installed on their computers. This elearning and multimedia industry-standard technology enables easy access to rich media elements such as animations, interactive games, videos, text, and MP3 audio (Macromedia.com. 2006). Given these brief statistics, it is difficult to justify the limited role of rich media in patient education when compared with the potential and likely benefits.

April 10th, 2007 By Jeremy Lundberg Comments Off

CNN Highlights Benefits of Cancer Social Networking and Support Website

Since 2001, DLC Solutions has partnered with The Wellness Community, an international not-for-profit dedicated to providing free cancer support and education services, to produce The Virtual Wellness Community. This pioneering Web site provides free, professionally-led online support groups for teens and adults with cancer and their loved ones. CNN recently highlighted the benefits of The Virtual Wellness Community during an interview with a member of one of the online support groups. To date, the Web site has helped thousands of people affected by cancer and the online support groups have been shown to be as effective as in-person cancer support groups in key areas. If you know of anyone that may benefit from TWC’s programs, please forward this on to them.

You can see the video interview at: http://www.dlc-solutions.com/