Archive for the ‘consumer health’ Category

May 22nd, 2008 By Jeremy Lundberg Comments Off

ABC News Highlights TheWellnessCommunity.org

As part of a special on melanoma, ABC News highlights www.TheWellnessCommunity.org, a cancer social support and networking Website for people affected by cancer. Since 2001, DLC Solutions has been the technology partner with The Wellness Community on the initiative, which helps an estimated 300,000 people each year.

May 13th, 2008 By Jeremy Lundberg Comments Off

Teens, the Web, and Health 2.0

An estimated 93% of teenagers are online (2007. Pew Internet & American Life Project). Despite this impressive statistic, the development of successful Health 2.0 Web applications for teenagers can be challenging. The days of developing static, “brochureware” Websites with the intent of positively changing health behaviors with this population are over. Today’s teenagers are less tolerant than their adult counterparts about what features they expect from a Website. Some key requirements are:

  1. Quick access to fully “read/write”, social environments.
  2. Information is presented and can be shared in diverse formats (e.g., video, pictures, stories, podcasts, blogs).
  3. Support of multiple communication tools, such as instant messaging and mobile text messaging.

The Pew researchers go on to report that 64% of online teens engage in at least one type of content creation through social media applications. More specifically, 55% of teens participate in an online social network, 39% share their own content creations (e.g., pictures, stories, videos), 33% collaborate on a blog or Website their peers, and 28% have created their own blog. The report goes on to identify a subgroup of teens that are considered “super communicators” and use multiple technologies on a daily basis including instant messaging, text messaging, and social networking. Only 14% email use email on a daily basis.

Again, these statistics are impressive. However, the report does raise the question: “How do health care organizations wishing to provide a top-notch, online service (e.g., online support) to this population do so without jeopardizing appropriate privacy, security and parental involvement concerns?”

The key to a successful Health 2.0 initiative for teens begins with detailed planning. Organizations should have a small, dedicated project team consisting of appropriate health care professionals, marketers, administrators, lawyers, and technologists. These members do not need to all be full-time employees. The team should be tasked with a number of items (list is not exhaustive):

  1. Defining clear objectives, specifications, and audiences for the Web initiative.
  2. Conduct ongoing focus groups with target populations in terms of wants, needs, and concerns.
  3. Determining a clear “Terms of Use” policy, staffing requirements and procedures for moderation/maintenance, and best practices for user security and parental controls.
  4. Analyzing and selecting appropriate technologies that meet the defined objectives, including security risks, vulnerabilities, upgrades, access authentication, and availability to search engines and other social networks.
  5. Continually re-evaluating of above steps, the project plan, feedback from users, and the overall initiative post-launch.

Today, the Web is more about people communicating and collaborating and less about the one-way distribution of information. Therefore, your Web strategy needs to reflect that reality.

You can download the complete report and other related reports at:

April 28th, 2008 By Jeremy Lundberg Comments Off

The Wisdom of Patients: Health Care Meets Online Social Media

What is Health 2.0? A new report from the California Health Care Foundation defines the term as: “The use of social software
and its ability to promote collaboration between patients, their
caregivers, medical professionals, and other stakeholders in health.” While the definition may appear simplistic, the broad range and depth of how social networking applications are and will continue to transform health care cannot be understated.

In the report, author Jane Sarasohn-Kahn of THINK-Health provides a thoughtful overview of how health technology companies are harnessing the power of groups to provide support, drive decision-making, and streamline information sharing. And, as the author aptly points out, “Consumers are well ahead of other health stakeholders in adopting social media in health.” Our experience would support this statement. Compared to our patient advocacy clients, the medical professional community has been slow to embrace these technologies as powerful tools for clinical education and collaboration. Thankfully, we are seeing a real change in this mindset.

Other key points discussed in the article include:

  • The role of group cohesiveness in weeding out inaccurate information, while promoting good information.
  • The creation of “patient opinion leaders.”
  • Concerns about (and the reasonable expectation of) privacy and security.
  • And, the growing proliferation of niche (e.g., disease specific) networks.

The report is a welcomed addition to the growing body of evidence supporting the use of social media in health care.

March 17th, 2008 By Jeremy Lundberg 1 Comment »

Medical Device Manufacturer Launches ED Social Networking Site

Cook Medical has launched a site, MensHealthPD.com, to connect and educate professionals and consumers on a form of erectile dysfunction called Peyronie’s disease. In addition to the standard educational materials and media, the site contains a public discussion forum (the social networking feature of the site).

I am really pleased to see another medical device company venture into the social networking realm. Having developed e-health Websites and communities for the past eight years, we have always found there to be great interest by pharmaceutical and device manufacturers to own and operate their own non-branded, consumer Web communities around a specific illness. However, their desire to let consumers contribute to the Website through features, such as blogs and discussion forums, is often limited or eliminated by internal legal and regulatory teams over liability concerns (e.g., documentation of serious adverse events that may be discussed by community members). As a consequence, many companies chose to stick with static, brochure Websites rather than developing a structured, strategic plan for social networking technologies that controls for risk, leverages the real power of Web 2.0 features, and provides a true service to the health care community.

Personally, I can only recall seeing a handful of inappropriate comments by members of the online health communities we have managed over the years. The comments were inappropriate, but rather benign. And, in keeping with the stated “Terms of Service Agreement”, the comments were moderated and removed from the communities. So, while we do live in an litigious society, there are steps and protocols that can be implemented to manage that risk.

December 18th, 2007 By Jeremy Lundberg Comments Off

The Virtual Wellness Community Silver Award Winner in the 2007 eHealthcare Leadership Awards

The Virtual Wellness Community, a social networking and support Website for people affected by cancer developed in partnership with The Wellness Community, recently received the Silver Award in the 2007 eHealthcare Leadership Awards. The Awards recognize the very best websites of health care providers, health plans, health care associations, online health companies, pharmaceutical/medical equipment firms, suppliers, other health care organizations, and business improvement initiatives. The eHealth Leadership Awards program was developed and first presented eight years ago by eHealthcare Strategies and Trends; a leading internet resource published by Health Care Communications. The awards aim to highlight the internet’s role in achieving an organization’s business objectives and recognize the hard work that has gone into creating outstanding health websites.

Re-launched in June 2007, The Virtual Wellness Community (www.thewellnesscommunity.org) was selected as a Silver Award winner in the Consumer Disease-Focused Site: Best Overall Internet Sites. DLC Solutions has been TWC’s Web technology partner for the Virtual Wellness Community since 2001. Winners were recognized during a special presentation at the Eleventh Annual Healthcare Internet Conference held November 4 – 6, 2007 in Las Vegas.