Archive for the ‘consumer health’ Category

June 8th, 2010 By Jeremy Lundberg No Comments »

Social Media and the Mobile Internet in Health Messaging

Many thanks to Susannah Fox and her colleagues at Pew Research Center’s Internet and American Life Project for continuing to generate some wonderful research on e-health.  The below presentation highlights the key findings of two new reports:

  • “Chronic Disease and the Internet”
  • “Understanding the Participatory News Consumer”

Both studies provide an in-depth look on the evolving role of social media, the Internet and the empowered patient.

November 6th, 2009 By Jeremy Lundberg 2 Comments »

The Wellness Community and Gilda’s Club Unify to Provide Support to All People Affected By Cancer

Yesterday, two prominent cancer support organizations, The Wellness Community and Gilda’s Club, announced they were merging under the new name, “The Cancer Support Community.”  I was honored to have been invited to present on “Social Media: Transforming marketing and outreach in the not-for-profit world” at their annual National Cancer Leadership Conference in Washington, DC.  The program was attended by more then 300 hundred healthcare professionals working in the field of psychosocial oncology.

Here is a snippet from the official press release:

“The Cancer Support Community offerings include a comprehensive menu of personalized and essential services, including support groups, counseling, education and healthy lifestyle programs. Additionally, the organization is working to expand its vital services to meet the urgent needs of cancer patients and their loved ones. To ensure no one has to face cancer alone, these support services will soon be available to people in all 50 U.S. states and internationally through the Cancer Support Community’s network of community-based centers, and at hospitals, community oncology practices and other non-profits, as well as online. The Cancer Support Community is also exploring the use of novel technologies, including mobile, to help extend the reach of these meaningful resources.

The Cancer Support Community is now the largest employer of psychosocial oncology mental health professionals in the United States. Headquartered in Washington, D.C., the organization includes a network of nearly 50 local Gilda’s Clubs and Wellness Community centers worldwide, more than 100 satellite locations and online support services that extend around the world. For more information about the Cancer Support Community, visit www.cancersupportcommunity.org“.

We have had the pleasure of being The Wellness Community’s technology partner for the past ten years and are so pleased to see these two wonderful organizations join forces to help everyone affected by cancer through their free support and education programs!

October 21st, 2009 By Jeremy Lundberg No Comments »

Education Network to Advance Cancer Clinical Trials (ENACCT)

ENACCT

As the technology partner to the Education Network to Advance Cancer Clinical Trials (ENACCT),  we are pleased to announce the launch of the re-designed Website, ENACCT.org.  ENACCT is a leading not-for-profit organization dedicated to improving access to cancer clinical trials through education and collaboration with communities, health care providers, and researchers.  (more…)

October 20th, 2009 By Jeremy Lundberg No Comments »

Announcing the New “Center for Hearing and Communication” Website

Center for Hearing and Communication

We are pleased to announce the launch of the newly re-designed “Center for Hearing and Communication” Website.  DLC Solutions partnered with the Center for Hearing and Communication (formerly known as The League for the Hard of Hearing) to produce the new Website, which reflects CHC’s new organizational brand and provides a wealth of information and resources for people affected by hearing loss.

Working closely with CHC, our team provided a complete end-to-end production solution that included: strategic planning, graphic design, information architecture, Flash development, software engineering, and technical project management services.  The site was developed using the industry-leading (and our favorite) content management system, Drupal.  By using Drupal, CHC is able to manage all aspects of the site through a Web browser, reduced development costs, streamline internal content publication, and set the stage for the ongoing expansion of the site into peer-to-peer networking and social media.

We are so pleased to be able to partner with CHC on this re-design initiative and hope that the effort will help to connect people affected by hearing loss with experts, peers, and the appropriate support services.

October 7th, 2009 By Jeremy Lundberg 2 Comments »

“To Friend or Not to Friend?” Healthcare Practice in the Age of Social Media

There has been a lot of healthy discussion lately about professional boundaries with patients when using social networking (SN)  and social media (SM) technologies, such as Facebook and Twitter.  The debate about how to keep your personal and professional life separate is especially challenging when you consider that social media is inherently designed to bring people together.

I advise my healthcare clients against “friending” or connecting with patients on their personal social networks because the unforeseen consequences and risks are too great and it takes the professional relationship outside of the clinic and makes its personal.  There was an recent incident on Twitter where the actress Demi Moore received a “tweet” from a person threatening suicide.  The story ended well with the person getting help.  But, as a healthcare provider, imagine if a patient you let join your social network started using the medium to get medical advice, therapy, or crisis management outside of the clinic or after hours.  It would be very difficult to manage and document the situation effectively, require you to constantly monitor your social network, and then untangle yourself from the online connection after the crisis had past. The professional risks greatly outweigh the benefits and can potentially compromise patient care.  Overall, social media should not be substitute for seeking medical care in the appropriate clinical setting or used to circumvent appropriate professional-patient boundaries.

Conversely, I am a huge advocate of healthcare organizations applying different social media tools to advance professional education and patient care.  When used appropriately with monitoring and moderation processes in place, the research does support the use of such technologies to raise awareness about diseases, provide support, advance professional competencies, and improve adherence to treatment.  But, in the age of social media, I believe that healthcare providers should work to keep their personal and professional lives separate to the benefit of all those involved.  Many of social media Websites have access/privacy controls that enable you to restrict access to your content and network, which will help mitigate such risks.

Here are two articles I thought you might find of interest.  One article is from a physician’s experience with a former patient on Facebook that was published in the New England Journal of Medicine and the other is from a respected social media analyst, Jeremiah Owyang: