Archive for the ‘consumer health’ Category

The Wellness Community and Gilda’s Club Unify to Provide Support to All People Affected By Cancer

Friday, November 6th, 2009

Yesterday, two prominent cancer support organizations, The Wellness Community and Gilda’s Club, announced they were merging under the new name, “The Cancer Support Community.”  I was honored to have been invited to present on “Social Media: Transforming marketing and outreach in the not-for-profit world” at their annual National Cancer Leadership Conference in Washington, DC.  The program was attended by more then 300 hundred healthcare professionals working in the field of psychosocial oncology.

Here is a snippet from the official press release:

“The Cancer Support Community offerings include a comprehensive menu of personalized and essential services, including support groups, counseling, education and healthy lifestyle programs. Additionally, the organization is working to expand its vital services to meet the urgent needs of cancer patients and their loved ones. To ensure no one has to face cancer alone, these support services will soon be available to people in all 50 U.S. states and internationally through the Cancer Support Community’s network of community-based centers, and at hospitals, community oncology practices and other non-profits, as well as online. The Cancer Support Community is also exploring the use of novel technologies, including mobile, to help extend the reach of these meaningful resources.

The Cancer Support Community is now the largest employer of psychosocial oncology mental health professionals in the United States. Headquartered in Washington, D.C., the organization includes a network of nearly 50 local Gilda’s Clubs and Wellness Community centers worldwide, more than 100 satellite locations and online support services that extend around the world. For more information about the Cancer Support Community, visit www.cancersupportcommunity.org“.

We have had the pleasure of being The Wellness Community’s technology partner for the past ten years and are so pleased to see these two wonderful organizations join forces to help everyone affected by cancer through their free support and education programs!

Education Network to Advance Cancer Clinical Trials (ENACCT)

Wednesday, October 21st, 2009

ENACCT

As the technology partner to the Education Network to Advance Cancer Clinical Trials (ENACCT),  we are pleased to announce the launch of the re-designed Website, ENACCT.org.  ENACCT is a leading not-for-profit organization dedicated to improving access to cancer clinical trials through education and collaboration with communities, health care providers, and researchers.  (more…)

Announcing the New “Center for Hearing and Communication” Website

Tuesday, October 20th, 2009

Center for Hearing and Communication

We are pleased to announce the launch of the newly re-designed “Center for Hearing and Communication” Website.  DLC Solutions partnered with the Center for Hearing and Communication (formerly known as The League for the Hard of Hearing) to produce the new Website, which reflects CHC’s new organizational brand and provides a wealth of information and resources for people affected by hearing loss.

Working closely with CHC, our team provided a complete end-to-end production solution that included: strategic planning, graphic design, information architecture, Flash development, software engineering, and technical project management services.  The site was developed using the industry-leading (and our favorite) content management system, Drupal.  By using Drupal, CHC is able to manage all aspects of the site through a Web browser, reduced development costs, streamline internal content publication, and set the stage for the ongoing expansion of the site into peer-to-peer networking and social media.

We are so pleased to be able to partner with CHC on this re-design initiative and hope that the effort will help to connect people affected by hearing loss with experts, peers, and the appropriate support services.

“To Friend or Not to Friend?” Healthcare Practice in the Age of Social Media

Wednesday, October 7th, 2009

There has been a lot of healthy discussion lately about professional boundaries with patients when using social networking (SN)  and social media (SM) technologies, such as Facebook and Twitter.  The debate about how to keep your personal and professional life separate is especially challenging when you consider that social media is inherently designed to bring people together.

I advise my healthcare clients against “friending” or connecting with patients on their personal social networks because the unforeseen consequences and risks are too great and it takes the professional relationship outside of the clinic and makes its personal.  There was an recent incident on Twitter where the actress Demi Moore received a “tweet” from a person threatening suicide.  The story ended well with the person getting help.  But, as a healthcare provider, imagine if a patient you let join your social network started using the medium to get medical advice, therapy, or crisis management outside of the clinic or after hours.  It would be very difficult to manage and document the situation effectively, require you to constantly monitor your social network, and then untangle yourself from the online connection after the crisis had past. The professional risks greatly outweigh the benefits and can potentially compromise patient care.  Overall, social media should not be substitute for seeking medical care in the appropriate clinical setting or used to circumvent appropriate professional-patient boundaries.

Conversely, I am a huge advocate of healthcare organizations applying different social media tools to advance professional education and patient care.  When used appropriately with monitoring and moderation processes in place, the research does support the use of such technologies to raise awareness about diseases, provide support, advance professional competencies, and improve adherence to treatment.  But, in the age of social media, I believe that healthcare providers should work to keep their personal and professional lives separate to the benefit of all those involved.  Many of social media Websites have access/privacy controls that enable you to restrict access to your content and network, which will help mitigate such risks.

Here are two articles I thought you might find of interest.  One article is from a physician’s experience with a former patient on Facebook that was published in the New England Journal of Medicine and the other is from a respected social media analyst, Jeremiah Owyang:

5 Reasons Why Twitter Is Relevant To Healthcare

Thursday, July 16th, 2009

Twitter.com, the widely-popular, free Web 2.0 platform that delivers short, real-time text messages to your social network of friends and colleagues, is slowly gaining traction in the healthcare market.  Consistent with my fifteen years of experience as both a healthcare professional, technologist and social media expert, consumer and patient advocacy groups are leading the way in experimenting with Twitter and other social media tools when compared to the medical professional education organizations (e.g., associations, pharmaceutical and medical device companies, medical education companies, academia).

Over the past few months, I have conducted my own personal experiment to evaluate the benefits and limitations of Twitter as a social media tool to advance my professional development.  Similarly, I have also reached out to my friends and colleagues, who are leaders in patient advocacy and continuing medical education, to gauge their current use, knowledge and/or future interest in leveraging Twitter as part of their organization’s Web, marketing, and social media strategy.   I will create a summary of those discussions in a separate post, but I have heard everything from:

  • “Huhh?”
  • “I can barely wrap my head around our Website.”
  • “It is noise.”
  • “I tried it for a week and don’t get it.”
  • “Yes.  We have tried a number of different pilots and are finally getting some pull-through.”
  • “I am addicted.”

I do not believe the wide spectrum of responses are uncommon and I continue to work with my friends and colleagues on developing a different understanding and appreciation of social media within their healthcare enterprise:)

So here are the five reasons why I believe Twitter is relevant to healthcare:

  1. Professional Networking: Hands-down, I have found the professional networking capabilities of Twitter to be the most valuable benefit.  When I first setup my account, I immediately “followed” people I knew from my favorite blogs and podcasts (aka “Twitter Celebrities”).  However, I was quickly disappointed by this approach.  Many of these high-profile Twitterers offered little in the way of the golden nuggets of information and commentary I was looking for.  Instead, I received rambling posts like:  “My baby just threw macaroni at me!” or “Starbucks has the best coffee”.  Who cares?  Not me (personal preference).  So I refined my Twitter approach, “unfollowed” many of those celebrities, and began to follow some of the people who were replying interesting posts to those celebrities or I had found through Twitter Search.  Twitter.com has powerful built-in search and connection features that enables you to see other people’s interests, read their posts, and easily follow them with a click of a button. Today, I have developed a wonderful network of people who provide a wealth of information related to my professional interests (e.g., continuing medical education, pharmaceutical marketing, patient advocacy, social media, Web 2.0).  In the absence of Twitter, it would have been very difficult to rapidly find and network with such interesting group of people outside of my normal professional circles.
  2. Research: Twitter has become my real-time “stock ticker” of healthcare and technology news, commentary, and events.  Not a day goes by that I do not receive a number of interesting posts on new CME programs, different applications of Web technologies to health education, and new research on how medical professionals and patients are engaging social media.  For example, I recently received a post that the Pew Internet & American Life Project had just released a new study, “The Social Life of Health Information” authored by Susannah Fox.  I am, like many of us, a huge fan of Susannah’s research.  I was immediately able to follow the post’s link, download the research report, and also follow and communicate with Susannah about her work.  The whole process took about 5 minutes (longer to read the research paper:), I am better informed about e-patients, and I am able to speak in real-time with the author about her findings.
  3. Marketing and Visibility: Twitter offers the potential to reach millions of people.  Within healthcare, I believe Twitter presents tremendous viral marketing opportunities for the dissemination of new and innovative health research and initiatives.  I have seen a number of organizations, such as the Cleveland Clinic, the Lance Armstrong Foundation, and the Centers for Disease Control, begin to leverage Twitter as part of their social marketing strategy to promote new health initiatives, announce new CME programs, and create a personal relationship with the public.  The posts are sent out to their thousands of followers who then “retweet” the posts to their followers, and so on.  Pretty soon, they have exponentially reached thousands of people by taking 15 seconds to type a short post with a link.  Personal example: When we launched the new version of The Wellness Community Online, an innovative Website that provides free, real-time support to cancer survivors,  I tweeted out an announcement to my network. My followers then retweeted my post to their followers. In addition, I asked Doug Ulman, CEO of the Lance Armstrong Foundation and who has 327,000 followers, to retweet my post. He did and we saw a substantial increase in traffic to the site, which will hopefully assist people with cancer in coping with their illness.  Cost: Nothing.  Impact: Huge.  Powerful stuff!!!    
  4. Professional Development: In addition to the wealth of educational opportunities (e.g., conferences, seminars) I have found through Twitter, I have also been very impressed by how healthcare professionals are able to put together impromptu gatherings at local restaurants or universities to discuss healthcare education and technology.  In March, I found Twitter posts about putting together an “un-conference” called HealthCamp Philadelphia.  The event’s objectives, agenda, and logistics were largely coordinated through Twitter and a free WordPress blog.  No expensive in-person planning meetings or printed marketing materials were required.  The result was a wonderful, low-cost conference on the role of social media and Web 2.0 technologies, which was attended by healthcare professionals and technologists alike.
  5. It is One More Tool in our Social Media Arsenal: Twitter is not THE answer to social media.  It is, however, a powerful addition to any healthcare organization’s social media strategy.  When used appropriately, Twitter can exponentially raise awareness about research, case studies, new initiatives, and news.  Personally, I can say that by spending a couple of minutes a day, I have gained a tremendous amount of knowledge and developed a wealth of new connections with some people doing some amazing work in healthcare technology.  Try it, experiment with it, and revise your usage strategy until you find one that best suits your needs.

I am sure that we all could come up with an endless list of how Twitter and other social media technologies can and are benefiting healthcare and our professional development.  I am hopeful that the healthcare community will be more willing to “test the waters” with Twitter as part of their social media strategy.  On a technical note, I rarely use the Twitter.com Website for my tweets.  Instead, I use two free applications:  TweetDeck on my desktop and Twitterrific on my iPhone.