Social Media, Adverse Events, & FDA; Social media in hospitals

June 23rd, 2009 by Jeremy Lundberg

Online Cancer Support Just Got Better…

June 17th, 2009 by Jeremy Lundberg
The Wellness Community Online

The Wellness Community Online

Approximately 35% of people with cancer experience significant psychological distress, including depression and anxiety (Zabora, 2001).  Since 2001, DLC Solutions has partnered with The Wellness Community to design and produce “The Wellness Community Online” (http://www.thewellnesscommunity.org).  The Website is widely regarded as the first Website to offer free, professionally moderated online support groups and education programs to people living with cancer and their caregivers.  In 2005, we designed and launched www.Grouploop.org to provide psychological support to teens affected by cancer.

As part of of our ongoing commitment to innovation and cancer care, DLC Solutions and TWC recently released a wealth of new social media features to enhance the community experience.

Website Features

  • Professionally-led, real-time chat support groups
  • Peer-to-peer social networking
  • Secure, thematic discussion forums
  • Personal blogs
  • Video journals
  • Webcasts and podcasts
  • Instant messaging
  • Interactive education modules
  • Research tools to monitor symptoms and key quality of life indicators

Today, both Websites have provided peer-to-peer and professionally moderated support to thousands of people impacted by cancer, HIV/AIDS, Parkinson’s Disease, and other chronic illnesses.  The Wellness Community Online is also part of a research partnership between TWC, Stanford University, and the University of California at San Francisco designed to enhance access to quality psychological support to people living with cancer and other chronic illnesses.  The research team has scientifically demonstrated that these online support groups are just as effective as face-to-face groups in reducing depression, increasing zest for life, and improving overall social functioning and quality of life.  Review a complete listing of the research publications from this effort.

We are very excited to be a part of such a wonderful and impactful Web initiative and we look forward to continuing to expand the site to better help those affected by cancer and other life-threatening illnesses.

Online Support Groups, Diabetes and Twitter, and “Facebook for Pharmacists”

June 16th, 2009 by Jeremy Lundberg

Doctor-Patient in the Age of Twitter, Tagged, & Social Media in Pharmaceutical Marketing

June 12th, 2009 by Jeremy Lundberg
  • Doctor and Patient – Medicine in the Age of Twitter – I blog, I tweet and I use Facebook. And as I recently told a medical colleague, social media has been an enormously useful tool in my work…
  • Tagged: The World’s Most Annoying Website – TIME – A great example of social media capabilities gone evil and worst practices…
  • Listening to Consumers in a Highly Regulated [Pharmaceutical] Environment – The roles of consumers and corporations have changed significantly since the advent of the Internet. Consumers have come to expect that companies can and should listen to their feedback and react to their input. Meanwhile, many companies are intimidated by the procedures that must be put in place for monitoring consumer feedback, and most importantly, following up on it. For pharma-health companies specifically, regulations surrounding Adverse Event reporting bring additional concerns. How frequently do AEs appear within social media discussion, and does this conversation meet the FDA’s requirements for AE reporting?

e-Health Game Changers: Smart phones, social media, and popular online groups

June 9th, 2009 by Jeremy Lundberg