- Found In Cache — Notes from Ed Bennett, a Hospital Web Manager – Directory listing and resource of hospitals using social media tools
- Association Social Media Wiki – A master list of associations that are using blogging, wikis, social networking sites, podcasting and other social media tools
- UCB to report Adverse Events to FDA via community site – UCB announced a partnership with PatientsLikeMe.com to launch an epilepsy-focused patient community, and will report adverse events to the FDA through round-the-clock surveillance.
- "Facebook for pharmacists" to offer news, CE and community – JMI Health is launching a social networking site for pharmacists. PharmQD aims to be something like a cross between LinkedIn and Facebook for pharmacy students, hospital and retail pharmacists,
Social Media, Adverse Events, & FDA; Social media in hospitals
June 23rd, 2009 by Jeremy LundbergOnline Cancer Support Just Got Better…
June 17th, 2009 by Jeremy LundbergApproximately 35% of people with cancer experience significant psychological distress, including depression and anxiety (Zabora, 2001). Since 2001, DLC Solutions has partnered with The Wellness Community to design and produce “The Wellness Community Online” (http://www.thewellnesscommunity.org). The Website is widely regarded as the first Website to offer free, professionally moderated online support groups and education programs to people living with cancer and their caregivers. In 2005, we designed and launched www.Grouploop.org to provide psychological support to teens affected by cancer.
As part of of our ongoing commitment to innovation and cancer care, DLC Solutions and TWC recently released a wealth of new social media features to enhance the community experience.
Website Features
- Professionally-led, real-time chat support groups
- Peer-to-peer social networking
- Secure, thematic discussion forums
- Personal blogs
- Video journals
- Webcasts and podcasts
- Instant messaging
- Interactive education modules
- Research tools to monitor symptoms and key quality of life indicators
Today, both Websites have provided peer-to-peer and professionally moderated support to thousands of people impacted by cancer, HIV/AIDS, Parkinson’s Disease, and other chronic illnesses. The Wellness Community Online is also part of a research partnership between TWC, Stanford University, and the University of California at San Francisco designed to enhance access to quality psychological support to people living with cancer and other chronic illnesses. The research team has scientifically demonstrated that these online support groups are just as effective as face-to-face groups in reducing depression, increasing zest for life, and improving overall social functioning and quality of life. Review a complete listing of the research publications from this effort.
We are very excited to be a part of such a wonderful and impactful Web initiative and we look forward to continuing to expand the site to better help those affected by cancer and other life-threatening illnesses.
Online Support Groups, Diabetes and Twitter, and “Facebook for Pharmacists”
June 16th, 2009 by Jeremy Lundberg- Social support can be a lifeline during health crisis – CNN.com – GroupLoop.org, co-developed by The Wellness Community and DLC Solutions, provides online, professionally moderated support for teens with cancer…
- Novo Nordisk’s “Race With Insulin” Twitter Page Blazes a New Path – Novo Nordisk’s new “Race With Insulin” twitter page (http://twitter.com/racewithinsulin) represents an important development in the evolution of Pharma’s role on the micro-blogging service.
- “Facebook for pharmacists” to offer news, CE and community – JMI Health is launching a social networking site for pharmacists. PharmQD aims to be something like a cross between LinkedIn and Facebook for pharmacy students, hospital and retail pharmacists.
Doctor-Patient in the Age of Twitter, Tagged, & Social Media in Pharmaceutical Marketing
June 12th, 2009 by Jeremy Lundberg- Doctor and Patient – Medicine in the Age of Twitter – I blog, I tweet and I use Facebook. And as I recently told a medical colleague, social media has been an enormously useful tool in my work…
- Tagged: The World’s Most Annoying Website – TIME – A great example of social media capabilities gone evil and worst practices…
- Listening to Consumers in a Highly Regulated [Pharmaceutical] Environment – The roles of consumers and corporations have changed significantly since the advent of the Internet. Consumers have come to expect that companies can and should listen to their feedback and react to their input. Meanwhile, many companies are intimidated by the procedures that must be put in place for monitoring consumer feedback, and most importantly, following up on it. For pharma-health companies specifically, regulations surrounding Adverse Event reporting bring additional concerns. How frequently do AEs appear within social media discussion, and does this conversation meet the FDA’s requirements for AE reporting?
e-Health Game Changers: Smart phones, social media, and popular online groups
June 9th, 2009 by Jeremy Lundberg- Top 10 Patient Groups Online – Last year for the first time, the Internet surpassed doctors as the top source of health information for adults in the U.S., according to Manhattan Research, a New York-based healthcare market research firm. More than 60% of adults go online to learn about diseases and treatments, visiting everything from healthcare websites and blogs to online patient communities. People with certain conditions are most likely to consult the Internet. Last month, Manhattan Research released its Digital DTC Relevance Rankings with the top 10 condition groups going online for information.
- Can a surge in physicians’ use of smartphones ripple to health IT adoption? … American Medical News – The availability of mobile technology could be the deciding factor for physicians looking for IT solutions that make them more efficient.
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- Social Media, Adverse Events, & FDA; Social media in hospitals
- Online Cancer Support Just Got Better…
- Online Support Groups, Diabetes and Twitter, and “Facebook for Pharmacists”
- Doctor-Patient in the Age of Twitter, Tagged, & Social Media in Pharmaceutical Marketing
- e-Health Game Changers: Smart phones, social media, and popular online groups
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Twitter: jeremylundberg
- RT @mobilehealth: Epocrates prevent ave one adverse drug event per week per doc for a total of ~100K ADEs per week http://tinyurl.com/nkwxqy 2009/06/23
- RT @SusannahFox: "Treat patients as a source of innovation" - Economist Intelligence Unit on health care http://is.gd/1aLwr 2009/06/23
- RT @shwen: RT @eyeonfda: The growing importance of Twitter - today's Eye on FDA posting http://bit.ly/URL9e 2009/06/23
- All Things Health 2.0 for June 19th (http://cli.gs/6X3Ue) 2009/06/23
- Ah the Power of the Retweet: CNN - http://bit.ly/aqCI0 #cnn 2009/06/23
- Social Media in Hospitals http://cli.gs/70XQBz 2009/06/19
- @EdBennett Great Resource: Hospitals using social networking tools http://ebennett.org/hsnl/ 2009/06/19
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